Fluoxatine 12 mg, monolaurin 1/2 scoop, 25 mg hydroxyzine, 10 mg Ritalin (this morning), magnesium, 2.5 mg melatonin, citicoline We started to see a new doctor at LCCare. It is based out of Colorado and we are doing online appointments. I found out about them on my PANDAS moms Facebook group. So I’m still setting up getting new supplements the psychiatrist ordered. One of them is black cumin seed oil. I have to wait to Monday to order them though because it is taking a while to make it so we can order the supplements on their website. They are clear about how they don’t make any money off the supplements, they just provide the service of making it easy for patients to purchase what is prescribed. Amazon’s aren't’ always clean. She likes the Ritalin but I’m worried about what it will do to her developing brain. Also, when I have stimulants they start to build up and freak me out after a few days. That is why she is also taking the hydroxyzine. We has her appointment this past Tues
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Well this has been going on for years, but recently I had to learn how to care form daughter's mono myself. It is scary when your daughter has EBV because it can lead to cancers if it hangs around for too long. There are websites that say chronic EBV is not treatable, but when you dig deeper there are studies that show there are actually ways to treat it. My kiddo was taking Valtrex for two years but she recently seemed to not do well with it anymore so we stopped. Then her illness got really bad so I started researching what to do. I jointed EBV facebook groups as well as PANS/PANDAS parent groups, since she has that too. I bought supplement on Amazon and have been titrating them. It is exhausting. Each evening I will list her medicine and then how/ what she is doing and what seems to be helping. L-lysine - Study Monolaurin - Healthline Article